Saturday, March 21, 2020

Sensory Processing Disorder (SPD) and Change



One of the most difficult things for someone with sensory issues is change.  The reason for that lies in the fact that familiarity is safe.  The goal of our neurological system is to keep our bodies in a place where we feel “just right”. Jean Ayres, an occupational therapist, first coins this phrase, claiming that the best therapy will be somewhere between too easy and too difficult.  At home, a "sensory diet" is prescribed, suggesting activities that will challenge without overwhelming.   

To accomplish this "just right", we (all of us) are constantly making adjustments to our environment.  We might avoid spicy foods or back away from a hot stove.  We might crave something salty or sweet or cover our ears when it is too noisy.  Shifting our weight to balance or holding our pencil a certain way all help us to maintain consistency in our body. 

When faced with an unknown, we have to process all kinds of new information.  For many people, this is relatively easy, but for others, the wealth of new input is overwhelming.  In familiar situations, a person with sensory processing disorder (and all of us on some level) has developed coping mechanisms over time.  They know where the quiet places are, what foods they will want to eat (or to eat ahead of time or bring a snack), what clothes are most comfortable, who will hug them or give them space, how long they are expected to sit in a chair and how much energy will be required to complete tasks.  They can plan and also relax as tasks become easier with practice.

Transitions mess all of that up.  For a person with sensory processing problems that has gotten to a comfortable, "just right" place, a change is like an alarm clock going off when you are fast asleep.  It is jarring, jolts you, and puts you into a panic.  That panicky feeling is your body's protection system, the very basis of your survival.  We know it as "fight or flight".  

Pretend that instead of a blaring alarm clock, you were given cues to tell your body to slowly wake up.  Maybe the curtains are slightly opened or soft music is playing.  Perhaps, someone is whispering your name and then speaking louder in regular intervals.  It would hopefully help to eliminate the shock of sleep suddenly interrupted.  Transitional cues and routines help those with SPD in the same way.  

If surviving in daily life is hard without routine, warnings, and predictability, imagine how difficult changes in that routine are.  School starts for the year while summer stops and vice versa.  Daylight Savings Time begins or ends.  It is a holiday or special event.  Favorite places are closed or menus change.  Eventually, all of these changes and transitions become the "new normal", but in the meantime, and to varying degrees those with sensory processing issues suffer.  They no longer feel "just right".

Sensory Processing Disorder (SPD) affects people with lots of different diagnoses, particularly those on the autism spectrum.  However, it can also occur all by itself.  It is almost harder that way.  It is invisible to others except for the resulting "behaviors" that they can see.  And that often results in judgments of "weird", "odd", "brat", "problem child/student", "distant", etc....Yes, the behaviors are difficult and probably need intervention, but they are not defiance.  Watch, observe, and see what you see.  You might find you are now looking with a different lens.

Friday, March 20, 2020

The Cycle of Feelings

My Dad told me once to never make decisions at night when I was tired.  Good advice.  I tried to nap and go to bed when I was feeling negative, but I still woke up just "done" today.  I haven't been sleeping really well.  Between waking up early, napping, and staying up late, I doubt that I'm truly getting the best rest.  It caught up with me today, I guess, because after lunch and a nap, I am feeling quite a bit better.  

I have to say, though, that after staying fairly positive despite continual change and uncertainty, I just didn't it in me this morning, and discouragement was really setting in.  I have to work pretty hard to stay on top of my mood.  Anxiety, depression, and a low sense of self-worth constantly try to creep in and take over.  One of the strategies I have learned to employ beside self-care is self-talk.  It is important for me to recognize that I hate transitions and change, but that I will feel much better as I become accustomed to the situation.  So, I realize that I AM adjusting to the barrage of cancellations and closings.  While my routine has been thrown into upheaval and unknowns still exist, I WILL adapt.  Meanwhile, I am uneasy and frustrated and being hungry or tired interrupts my ability to cope.  I am trying so hard to be strong, but I also need to give myself grace.  So, if you're feeling that way, too, you're not alone.  And it's going to be ok - eventually.


“But those who hope in the Lord will renew their strength; they will soar on wings like eagles; they will run and not grow weary; they will walk and not be faint.” Isaiah 40:31

Wednesday, March 18, 2020

We're Calling It #AlliesBigAdventure

3/17/2020
Stuck!  Why isn’t this ship docking?


My family has been receiving updates for the last two days from my sister who is stuck on the Celebrity Eclipse in the waters off San Antonio, Chile. This evening, the passengers were officially denied access, and the ship will now move on to refuel, restock, and sail to San Diego to fly home from there. As this was the end of a 2 week cruise, adding 2 days of negotiations and 10 days of additional sail time will turn this into a nearly month-long adventure. Guess she’s getting her money’s worth.

3/18/2020
Incoming


Allie is our littlest sister.  She's the one stuck on the cruise ship.  The rest of us are stuck at home.  Not sure who has it worse, lol.  

Apparently, after being denied access to Chile Monday evening, the ship headed  to Valparaiso about 4 hours away to refuel and get provisions.  This was expected to take about 24 hours.  

Yesterday, around noon, they were in Valparaiso, and we all joked that her overpacking had paid off.  She was in good spirits, working from the ship, despite a slow internet connection.  

Just before 7 pm EST (Tuesday evening), Allie reported that the supplies were back in San Antonio (the original port) clearing customs.  Good grief!  Another night anchored.

Then, this morning, Allie sent the above picture with the caption, "Incoming".  Since the Eclipse wasn't able to dock to get them, all of the supplies were being brought in one boatload at a time.  Anticipated departure is tomorrow morning.  Dad calls it #AlliesBigAdventure.

Stay tuned!


3/20/20
Finally On Their Way

Valparaiso

Allie’s been working a lot so her coworkers don’t get left with all her assignments.  She’d probably be working remotely anyway, so I guess she might as well enjoy the fresh air!

The general mood on the cruise is positive, and passengers report being treated very well by the ship’s crew.  Activities, entertainment, food, and drink are being provided, and even crew that were supposed to be ending a contract and returning home are working tirelessly to maintain a quality guest experience.  A few are keeping to their rooms, and of course, at least one or two are very frustrated with not being able to be home to run their business and take care of their responsibilities.  Captain Leo is especially well-liked and has been consistently communicating with guests and crew alike

The final items to the be loaded at Valparaiso were requested medications, such as insulin, to support the additional days at sea.  Even, contact lens solution has reportedly been restocked in the onboard shop.  After 5 long days of deliberations, refueling, and replenishing of supplies, the voyage to San Diego was underway late Thursday night.  Estimated arrival is March 30.


Captain Leo
Having Fun On Deck

3/21/2020
Recognition of Healthcare Workers





Allie's hasn't reported in yet today, but fellow passengers shared that the Eclipse saluted healthcare workers with one minute of applause this afternoon on deck.  Another photo shows the journey they are undertaking from Chile to San Diego, California.



3/23/2020
Still working, enjoying nature





Week 2 of working from the ship.  Food is still as good as ever, but Allie says she has been eating too much and is cutting back.  Apparently, there were pods of dolphins swimming alongside the Eclipse and the sunsets are gorgeous!


3/27/2020
Preparing for home



The Celebrity Eclipse is scheduled to dock in San Diego the morning of March 30th!  The staff and crew are still giving their passengers the royal treatment whether that be in the spa, dining room, or theater.  Also, they are busy arranging flights home for all passengers and will be transporting them directly to the airport in buses.  Passengers that do not have clearance to disembark in the United States will be taken to Puerto Vallarta afterwards.  Life onboard hasn’t been boring.  No one is sequestered although some, like Allie, are spending most of their time in their room.  Allie normally works 50+ hours a week, so she has been busy.  


3/31/2020
Home at Last



They finally made it! The ship docked early morning in San Diego, and passengers were allowed to disembark based on their flight time. Allie and all of her crew have arrived home safely, and are thrilled to be back, safe and sound.

Many thanks to Celebrity Cruises for taking a tough and unplanned situation and turning it into a positive journey. You did not stop advocating for your passengers and continued to provide top-notch service even when your crew was exhausted and your company was taking a major financial hit. Your communication and commitment have set a great example for others to follow.


#celebrity #cruise #coronavirus #sandiego #celebrityeclipse #chile #deniedaccess #extralongvacation #workingfromtheship #negotiations #thevulnerablemom #thevulnerablemomblog #justkeepsailing #southamerica #californiabound #travel #vacation#AlliesBigAdventure



Love to Learn - Toss Games

Toss games are a fun way to improve hand-eye coordination and concentration, learn and review content, and practice social skills such as taking turns and following directions. They are very versatile and can be as simple or fancy as you desire. They can be played alone or with others and tend to entice people of all ages.

Use buckets, boxes, baskets, bowls, or anything else you can find (you can even draw circles in chalk or use paper “targets”) and toss rings, bean bags, balls, or even rolled up socks to create a custom toss game. Line up the targets either in a line or random pattern and label them with point values, actions, etc....A toss then either happens as a result of answering a question correctly or causes something to happen (like gaining points or winning a prize).



Here are some examples:


1.  Read a sight word or answer a question, and get a turn to toss.
2.  Label the targets with story characters and aim for the one that is asked about.
3.  Match a number symbol with its written form. Label the targets with words and the item to       be tossed with the number symbol or vice versa. This also works with upper and lower case         letters.
4.  Match math facts with answers.  This is a good way to limit the number of problems worked       on at a time.  Any question-answer combination would work.
5.  Higher level questions might include vocabulary, amendment numbers, and geography.
6.  Without questions,  make a toss game that fits with a specific theme.

*Note:  For your convenience, I have included Amazon links, however, it has been my experience that many of these things are available at Dollar Tree or can be substituted with items already in your home.

Incorporate teamwork with this human ring 
toss which makes use of inflatable pool rings.

This game uses paper plates
and coordinating bean bags.

Reuse your plastic bottles with pipe cleaner rings.
Each team tries to get their ball in the other
team's buckets.  This could be used with 

only one bucket or even more.  
Sight words are written and circled
in chalk.  The cards indicate which
sight word to throw the bean bag at.
In this version, sight words are written
on different color water balloons.
 
This themed toss game,
uses cotton balls or fake
snowballs to fill a pop-up
hamper decorated like a
snowman. So cute!



Bean bags and dollar store dog
bowls are sure to make this puppy
themed toss game a hit!

I love the idea of using Duplos as targets and 
pipe cleaners as rings! 
**Word of caution: The Lego towers fall easily 
and could become quite frustrating. **
Decorate individual cones 
(buckets, bowls, etc..) to fit 
with your theme.  
I've done this before 
for birthday parties.
Simple paper plate rings and
paper towel roll targets make 
this an easy, cheap, and
disposable game.
Brightly colored buckets are 
each labeled with increasing 
point values.

Friday, March 13, 2020

Shaking my head at the irony.....Life Imitates Art

 Well, in light of the recent announcement that both Walt Disney Parks and Universal Studios Florida are closing for (at least) the next couple of weeks, I can’t help but share this additional clip from National Lampoon’s Vacation.




All I can do is shake my head and laugh......Enough said.


Thursday, March 12, 2020

Great Movie Pick! National Lampoon's Vacation


Just putting this out there.......Figure we could all use a little comic relief right now...


Laughing from Florida,

The Vulnerable Mom

Clark: Roy; can I call you Roy? Have you even driven your whole family cross-country?
Roy Walley: Oh, hell yes. Once I drove all of them to Florida. The smell coming out of the back seat was terrible.
Clark: I know that smell, Roy; but what if you had driven all that way and Florida was closed?
Roy Walley: Closed? Uh, they don't close Florida.

Tuesday, March 10, 2020

16! Time to Celebrate!

Rachel turned 16 this week.  She got her driver's license.  She drove through Starbucks and picked up her little sister from middle school (by herself!), and I was okay with it.  She's been growing and gaining skills and wisdom in a way that is unique to adolescence but encouraging to a mama.  She's maturing.  It's good to see.  

The cool thing about this picture is that is one of many faces that Rachel
makes in this show, "The Fire Within".  She is playing marimba in
Infinity 3 this season. 

To see more, visit our "Infinity Percussion" page.
You know what else?  My kids are fun.  We laugh so hard sometimes, and we also cry.  Our kids get more "only child" time these days.  We tell them they are the "only child" when they are the only one with Steve and me.  Many days that is Justin when his classes take less time than the girls.  Often, it is Hannah as Justin and Rachel participate in percussion activities.  Sometimes, Hannah is the busy one.  This past month, Steve and I actually had a day of being "only parents" when all 3 kids had plans on a Saturday.

  
Hannah is a Junior Thespian.  Her troupe just performed Seussical Jr.
As you can see, Hannah was THING 3 and did an outstanding job
of providing comic relief during set changes.

To see more, visit our "Proud Mom Showcase" page.




I realize it's good.  It's busy.  It's a mom with older kids watching her kids live their dreams.  I am grateful.  


Ecclesiastes 3:1  To everything there is a season, and a time for every purpose under heaven.
Justin is finishing his 2nd year of college and is performing
on the vibraphone with Infinity this spring.  He is a very
dedicated musician and is enjoying his 4th season with
Infinity Percussion.
 
To see more, visit our "Infinity Percussion" page.